Happy Birthday Casey

Today would have been Casey's 15th birthday. If he had of been here I just can't believe he would have been that old. I am taking this birthday a lot better than last year, because he died almost a month before his 14th birthday. Also last year Easter was a day after his birthday. In all his life I never remember Easter being so close to his birthday. He loved Easter, because he loved to hunt Easter eggs. He was always so good at hunting them, he always got the most eggs, even when he was little at the day care, they said he got more eggs than the other kids. I would bet if he was still here as old as he would be I think he would still want to hunt Easter eggs. He wasn't much on trick or treating.
This one they were hunting eggs in the front yard.

I have more but they are not scanned into my computter. Holidays were really important to him. I even have pictures of his birthdays. His 13th birthday I did not make a big deal out of it, he had school that day, I just invited his friend and his friends family over and we had hot dogs. I can't find the picture of his last birthday. I'm not sure if it is here on the computer or if I have it as a picture somewhere. I wanted to post it, because his friends Mom could always make him blush. It was a good picture of him blushing. He was kind of shy, I thought. But the kids said he could always make them laugh. So maybe he was not shy around the kids. I know he always kept on making us laugh here at home. Just like when he was five, I had said I needed to wax my car. He spoke up and said "good I can clean my ears out now". I had to laugh at that and tell him it wasn't that kind of wax. It took him awhile before he could talk, but when he did start talking he did not stop. I think he was close to 4 before he started talking. Well I will post this now and go look for that picture. Happy Birthday Casey, love you much. I found the picture, after I remembered where it was, I went right to it.

It was with all the pictures that my daughters had gotten up for the furneal home. They made a cd of Casey's life and played it the night the vistors came. I think we got a couple of copies of it.

Husband went to work

Well we got my husband to SC, we thought we were going to have to go back and get him. The doctor was not going to pass him to drive. So my husband had to call the gene doctor to get him to fax a paper to that doctor. After the doctor got the paper and read it, he passed him. That was a big relief. It felt like a big weight was lifted off my shoulders.
Yesterday I went to the Employment Security Office trying to get help finding a job or going back to school. I still want to get into doing office work in the medical field. I would like to do medical transcription. He gave me one job to fill a applaction online I did that. He also told me to call Social Security to try to get a work and salary history. I called today, but the woman said I had to pay for it. I ask how much, she said for 1 year it was 15 dollars. She thought up to 5 years would be up to 40 dollars. I said I would have to forget that. But instead the woman helped me with the years. I worked at one place that I thought was 2007 come find out it was in 2005, I did not think it was that long. Man time sure does fly. He also gave me a place to call that it's called Vocationl Rehabilitation he said they could test me and see what kind of work I can do and they will also train. Sounds like things are beginning to look up. Maybe I will have a job or do some kind of training soon.
I just want to stay busy now, I do not like staying at home anymore. All that is here are my dogs and cats. That's all I have to take care of now.
These are pictures of 3 of my critters, I can't find one of my other dog.

Husband going to SC

Well my husband is going to try to go back to driving a truck. I have to take him to Sparkenburg, SC. He will have to be a rehire, because his medical leave ran out Feb.21. Since he was not ready to go back to work by then it was like he quit.
I had a interview with Wal-Mart but never heard anything out of them, they kept saying they would call, that was a month ago. I saw in the paper today they had charged 3 people with Larceny by employee. I think that is a shame, they hire somebody that stole from them and they did not hire me who would not steal from them, I just want to work.
We have had rain for the past 4 days it is getting very depressing, I have been thinking more of Casey since this rain has been around. Hopefully tomorrow will be pretty it is suppose to be in the 60's. It has been cold with this rain.
Saturday my sister-in-law gave me a notebook with recipes, she wanted me to type them up for her. She had gotten them from her ex-mother-in-law that lives in W Virgina. I got 6 typed up and sent to her, but did not feel like doing any today. I have not done much at all today, I guess it is the rain. Well I guess this is all I know for now.

Doctor appointment

Well my husband had another appointment with the gene doctor. They called last week and said he does have Ehlers-Danlos Syndrome. When we saw the doctor he said he did not see why he could not live a long life with care looking at my husbands Mom. My husbands Mom is 69. She out lived her 2 brothers and a sister. My husband can resume a normal life, but certain things he can not do. For one he can not lift weights to try to build up muscles. He can lift weights to keep his strenth up, he can't do a hobby that might hurt him. He will have to wear a medical braclet or necklace to warn of the EDS.
Our daughter with the baby needs to be checked to see if she has it. I'm hoping she does not have it. She does not have the features of having EDS. She has a round face like mine.
We ask about Casey, cause I told the dr, I had noticed Casey's face getting long before he died. We showed him a picture of Casey. He said Casey had EDS. When he looked at his picture he said Casey's chin would have started going in like his Dad's. This is Casey in 2006-2007. The second picture is 2007-2008 they were taken in the fall.


The dr said the narrow bridge in his nose is a feature of the diease. He said his chin would have started going in to. I ask about the arota dissection, because I had read on the EDNF site that EDS does not cause those. The doctor said it does. He said not to take what I read on the internet seriously, cause most people that write on the boards and stuff have really bad syptoms. My husband has went this long without any trouble, so his is not so bad. My husband is 44.
I don't know in a way I wished this had of happened before Casey died, then we could have know to watch for things. But then if Casey had not have died he might at some time go through the things my husband has went through. And Casey would have had trouble with his teeth. I still miss Casey, but I would not have wanted him to have the troubles that EDS causes. He was saved from all that. I love you Casey and am looking forward to seeing you again.

I still miss my son

Well it has been a year today. I still miss my son. I was going to say my baby, but he was not a baby, he was my big helper. All the years before he was born and before he got big enough to start helping me, I was use to doing things myself with no problem. But I had gotten so use to him helping me, now I can't do things like I use to. Physical I can, but it just mental I feel I can't. When ever a light blub burnt out he changed it for me, I'm not good with height, and every light blub in this house, I have to stand on something to change it. Casey had to stand on something to, but heights did not bother him. He use to throw things on the roof, just so he could climb up there to get it. I got scared every time he got up there.
Today the social worker from the school called cheking on us, just to make sure we were ok and she told me if we ever needed her to call. She remember today was the day Casey died. I was surprised she remembered. I told her about what my husband may have, and I gave her the website. She said she had never heard of it. I told her there was a section there for parents and teachers with kids that have EDS. I thought it would be a big help to her.
I guess this is all, I feel I am not making any since of what I am writing, I'm just rambling.

Bad news

Like I said before things are not good and they don't seem they are going to get any better.
My husband went to the gene doctor yesterday, they drew some blood for test. But the doctor is thinking he may have Ehlers-Danlos Syndrome Type IV. They gave me a website to check out, it is http://www.ednf.org/ , I was reading about it and when I got to the last part it said people with that do not usually live past there 40's. My husband is 44.
So now I don't know what will happen. They said it may take about 2 or 3 weeks before the results come back. But there is not much the doctors can do about what he has.
O and he went to the doctor Monday that was going to put him back together, but now the doctor said he wasn't going to do it unless the gene doctor said it was ok. His other doctor said he could have a stroke if he put him back together.
I guess this is all I can think of now. If I think of anymore I will post, but right now I have to get ready to go to my Mom's, my brother and his wife are coming and we are going to Casey's grave and then going out to eat.
I hope everyone has a great Valentines day.

Not much better

Things are not much better. My husband has been in the hospital 2 more times. One he had a abscess, not sure how that is spelled. But they put a tube and a bottle at the end so it would drain. Well he got over that and about 2 weeks ago I had to take him back. He said his kidney and side was hurting. And he was throwing up. That scared me. Because he did something that reminded me of Casey. They kept him a few days, then sent him home. They did not do anything. He has weakening of his arteries. And through all that I found out the way Casey died is the way my husbands mother, mother died. My husbands right kidney is not getting enough blood, the doctor says the vein going to his kidney has a spilt in it. The doctor says they could fix it, but for some reason they were not going to do it. My husband had 2 uncles to die with aneurysm of the kidney. So I don't know what might happen, they gave him a cholesterol medicine, they said his cholesterol was a little high. So right now all we do is go to doctor appointments and wait around. I don't know if he will die to, like his uncles or not.
They are suppose to hook him back up sometime this month I think, where he will not have that bag on his side. That's about all for now. I finally have a cold or something, I'm coughing and I feel like if you take my head off I will be ok. I have not felt this way in 2 or 3 years. If I think of something else I will update, but right now this is all I can think of. Thank You!