I still miss my son

Well it has been a year today. I still miss my son. I was going to say my baby, but he was not a baby, he was my big helper. All the years before he was born and before he got big enough to start helping me, I was use to doing things myself with no problem. But I had gotten so use to him helping me, now I can't do things like I use to. Physical I can, but it just mental I feel I can't. When ever a light blub burnt out he changed it for me, I'm not good with height, and every light blub in this house, I have to stand on something to change it. Casey had to stand on something to, but heights did not bother him. He use to throw things on the roof, just so he could climb up there to get it. I got scared every time he got up there.
Today the social worker from the school called cheking on us, just to make sure we were ok and she told me if we ever needed her to call. She remember today was the day Casey died. I was surprised she remembered. I told her about what my husband may have, and I gave her the website. She said she had never heard of it. I told her there was a section there for parents and teachers with kids that have EDS. I thought it would be a big help to her.
I guess this is all, I feel I am not making any since of what I am writing, I'm just rambling.

Bad news

Like I said before things are not good and they don't seem they are going to get any better.
My husband went to the gene doctor yesterday, they drew some blood for test. But the doctor is thinking he may have Ehlers-Danlos Syndrome Type IV. They gave me a website to check out, it is http://www.ednf.org/ , I was reading about it and when I got to the last part it said people with that do not usually live past there 40's. My husband is 44.
So now I don't know what will happen. They said it may take about 2 or 3 weeks before the results come back. But there is not much the doctors can do about what he has.
O and he went to the doctor Monday that was going to put him back together, but now the doctor said he wasn't going to do it unless the gene doctor said it was ok. His other doctor said he could have a stroke if he put him back together.
I guess this is all I can think of now. If I think of anymore I will post, but right now I have to get ready to go to my Mom's, my brother and his wife are coming and we are going to Casey's grave and then going out to eat.
I hope everyone has a great Valentines day.

Not much better

Things are not much better. My husband has been in the hospital 2 more times. One he had a abscess, not sure how that is spelled. But they put a tube and a bottle at the end so it would drain. Well he got over that and about 2 weeks ago I had to take him back. He said his kidney and side was hurting. And he was throwing up. That scared me. Because he did something that reminded me of Casey. They kept him a few days, then sent him home. They did not do anything. He has weakening of his arteries. And through all that I found out the way Casey died is the way my husbands mother, mother died. My husbands right kidney is not getting enough blood, the doctor says the vein going to his kidney has a spilt in it. The doctor says they could fix it, but for some reason they were not going to do it. My husband had 2 uncles to die with aneurysm of the kidney. So I don't know what might happen, they gave him a cholesterol medicine, they said his cholesterol was a little high. So right now all we do is go to doctor appointments and wait around. I don't know if he will die to, like his uncles or not.
They are suppose to hook him back up sometime this month I think, where he will not have that bag on his side. That's about all for now. I finally have a cold or something, I'm coughing and I feel like if you take my head off I will be ok. I have not felt this way in 2 or 3 years. If I think of something else I will update, but right now this is all I can think of. Thank You!