Like I said before things are not good and they don't seem they are going to get any better.
My husband went to the gene doctor yesterday, they drew some blood for test. But the doctor is thinking he may have Ehlers-Danlos Syndrome Type IV. They gave me a website to check out, it is http://www.ednf.org/ , I was reading about it and when I got to the last part it said people with that do not usually live past there 40's. My husband is 44.
So now I don't know what will happen. They said it may take about 2 or 3 weeks before the results come back. But there is not much the doctors can do about what he has.
O and he went to the doctor Monday that was going to put him back together, but now the doctor said he wasn't going to do it unless the gene doctor said it was ok. His other doctor said he could have a stroke if he put him back together.
I guess this is all I can think of now. If I think of anymore I will post, but right now I have to get ready to go to my Mom's, my brother and his wife are coming and we are going to Casey's grave and then going out to eat.
I hope everyone has a great Valentines day.
2 comments:
I left my comment on the previous post before I realized you had updated.
That's ok.
I was reading more on that ednf site yesterday. I saw where it said kids with EDS have a lot of stomach aches. Casey said a lot of times his stomach hurt. And now my husband has said his stomach hurts after he eats, and the things he has eaten I do not see why his stomach should hurt.
Post a Comment